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NJ Catastrophic Illness in Children Relief Fund Program

 

           WAYNE - Months after they organized a drive to help 12-year-old Nicole Gioia, her family is still seeking a compatible donor who would be able to provide her with a much-needed bone marrow transplant, her father said Wednesday.

Nicole suffers from Hodgkin's lymphoma, a type of cancer that attacks the lymphatic system. Doctors have suggested she receive a bone marrow transplant to help fight off the disease. But finding the right donor has not been easy.

There is no known cause of Hodgkin's lymphoma, which accounts for less than 1 percent of all cancer cases nationwide, according to the National Cancer Institute.

Nicole was first diagnosed when she began to feel a pain her neck in 2001.

In October, about 1,000 people turned out at a bone marrow drive at the Calvary Temple. Of those, 739 eligible donors provided blood samples, adding to the 200,000 people in the national database maintained by the River Edge-based HLA Registry.

Since then Nicole has remained in remission, her father, Rick, said. Still, she requires regular chemotherapy treatments that take her away from the activities she loves, such as school, tennis lessons, and playing the drums.

"Life for her, right now it stinks," he said. "She's got cabin fever. She can go out but not to school. She wants to go to school. She wants to be a normal 12-year-old and this doesn't allow her to do that. It really is tough on her, having to miss everything."

The disease has also put stress on the family as they focus on Nicole's treatments.

"Your life is now cancer. With my wife it means running back and forth to the hospital three times a week," he said. "Life revolves around this one issue."

He said his family was thankful for the large turnout at the blood drive, and the money they donated to help pay for the event. The family had agreed to pay the $30 per bone marrow test, but that was offset by donations, he said.

"It was a very gratifying and humbling experience that all these people would come out and open up their veins, and their wallets," he said.

The family, which organized the event, does not have any plans for another drive.

E-mail: ratish@northjersey.com

 


 

 

 

HOW YOU CAN HELP:

Those who would like to register their bone marrow type can do so by calling the HLA Registry. Registering requires giving a blood sample. Donors must be 18 to 60 years old and in good health. For more information or to register, contact the HLA Registry at (800) 336-3363, ext. 27 or ext. 0, or visit www.nicolegioa.org. 

 

Front-End Design by Yudhi Sutjiawan: Back-End Design by Chris Ebert: Updates by Rick Gioia